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The Reuben H. Fleet Science Center welcomes Noah and Alexis Beery on Saturday, November 15

The Beery twins will share their story of healing and the power of genomic science at our current traveling exhibition, Genome: Unlocking Life’s Code. - See the exhibition brought to life and meet the family forever changed by genome sequencing technology

November 10, 2014

This Saturday, November 15, the Reuben H. Fleet Science Center is excited to welcome Noah and Alexis Beery to join us at our current traveling exhibition, Genome: Unlocking Life’s Code.

Diagnosed early in life with cerebral palsy, the twin’s condition seemed to get worse as they got older and seemed to resemble cerebral palsy less and less every year. They had seizures and were in constant pain. Doctors were unsure if they were going to be able to live normal lives.

In 2009, the technology for genome sequencing became available for the twins. The results of the sequencing led scientist to a more definitive diagnosis of Segawa’s disease, a rare but treatable disease caused by a mutation in the genome. Since beginning treatment, both twins have made a full recovery.

Come hear their miraculous story with us. The twins will be available to answer your questions and speak with visitors one-on-one in the Genome exhibition.

The event begins at 10:30 a.m., with Noah and Alexis in the Genome exhibition, talking to visitors and answering questions about their own personal story. Educational facilitators will also be on-hand, leading fun science activities for kids and young adults, such as extracting DNA from strawberries and testing the hereditary ability to taste bitterness.

At 1:30 p.m., Noah and Alexis will give a talk about their experiences, followed by a Q&A session.

The event is free with Fleet admission.

Noah and Alexis can both be available by appointment for media interviews in advance of the event. They are 18 years old and San Diego residents, and they are excited to share their story in the hope that it might help others. Their story has captured national attention in the past and has been seen as a triumph in genome sequencing technology.

To schedule an interview or media appearance, please contact Reuben H. Fleet Science Center Public Relations Manager Nathan Young at 619-685-5743 or nyoung@rhfleet.org.

WHEN:           

Saturday, November 15, from 10:30 a.m. to 2:30 p.m.

WHERE:        

Reuben H. Fleet Science Center
1875 El Prado in Balboa Park
www.rhfleet.org

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MORE INFO:

Link to the event on the Reuben H. Fleet Science Center website:

http://www.rhfleet.org/events/noah-and-alexis-beery

Three-minute background video of Noah and Alexis’s story:

http://unlockinglifescode.org/media/videos/730#731

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About the Fleet Science Center:
The Fleet Science Center connects people of all ages to the possibilities and power of science to create a better future. At the science center, you can explore and investigate more than 100 interactive exhibits that pique your curiosity and become immersed in an IMAX film adventure that shows the wonders of the planet--and beyond--in the Eugene Heikoff and Marilyn Jacobs Heikoff Giant Dome Theater. For young science enthusiasts, the Fleet hosts school field trips, science workshops and educational camps. For adults, we offer events like Fleet Night of Science and community events, such as Two Scientists Walk Into a Bar™. In the community, we also provide free neighborhood science events weekly through 52 Weeks of Science. Teachers are encouraged to join our Teacher Partner Program and take advantage of our professional development opportunities. Additionally, at the Fleet Science Center, visitors will find unique educational toys and games, books, IMAX DVDs and more in the North Star Science Store, and pizzas, sandwiches, salads and healthy treats in our Craveology cafe. Located in Balboa Park, at 1875 El Prado, two blocks south of the San Diego Zoo on Park Blvd., the Fleet is San Diego's science center. Science starts here and opens a world of possibility.For information regarding current admission prices, visit our website at fleetscience.org.
 
About Balboa Park:
Located near downtown San Diego, Balboa Park is the largest urbancultural park in the United States. First established by the City of San Diego in 1868, it is also one of the oldest city parks in the nation and is the most visited single destination in San Diego. Its 1,200 acres include 17 museums, many gardens and attractions, the San Diego Zoo, miles of hiking trails, and multiple athletic complexes to explore and discover. For more information, visit balboapark.org.